Policy Regarding Newborn Screening Residual Dried Blood Spot Specimens: Approved August 2013
Supports policies on the retention and use of residual dried blood spot (DBS) specimens that are transparent, protect privacy, address parental concerns, and promote education and informed public participation.
Newborn Contingency Planning: Approved December 2011
Recognizes that all state newborn screening (NBS) systems should have a Continuity of Operations Plan (COOP) that ensures minimal or no interruption of services.
Newborn Screening Follow-up: Approved December 2011
Acknowledges and endorses the follow-up considerations previously published by the American Academy of Pediatrics Newborn Screening Task Force, the Council of Regional Networks for Genetic Services regarding newborn screening systems and Clinical and Laboratory Standard Institute.
Parental Consent for Newborn Screening: Approved December 2011
Supports the position that state-mandated newborn screening (NBS) should not require parental consent. If state programs elect to utilize the process of informed consent or dissent for screening, such parental consent or dissent should be clearly documented and maintained as part of the infant’s NBS record.
Quality Assurance in the Newborn Screening Laboratory:
Approved December 2011
Recognizes the intense efforts to assure and sustain the highest quality of testing possible for newborn screening (NBS) for public health programs. Strongly supports the tenets of continuous quality improvement through internal and external quality assurance activities.
The Role of the Private Sector Laboratory in Public Health Newborn Screening Programs: Approved December 2011
Supports the position that there is a role for private sector laboratories in the provision of state public health newborn screening (NBS) services.